April 14th 2023, we are holding Australia’s first ever Sotos Syndrome Conference.

Having spoken to our base they told us they wanted a conference so they could connect with others with Sotos Syndrome and their families, plus they could learn more about Sotos Syndrome. This became the inspiration for our theme – Connect and Learn.

We are pleased to announce our keynote speaker is Dr Bradley Shaefer.
He is one of the world’s leading authorities on Sotos Syndrome and other overgrowth disorders. He is also a Professor of Genetics and Pediatrics at University of Arkansas for Medical Sciences, Arkansas Children’s Northwest. 

We are also thrilled that Melanie Dimmitt, Author of The Special Book and The NDIS Podcast, has agreed to be one of our keynote speakers for the Sotos Syndrome Conference 2023! She will be speaking about connection along with running an activity to help families to connect.

Our 3rd and final guest speaker will be Lauren West MS, CCC-SLP. She is a speech-language pathologist for the Omaha Public School system in Omaha, Nebraska. In her ten years there she has served both the middle school and early intervention home-based populations. Lauren has had the opportunity to attend SSSA conferences as a child, as the daughter of a clinical geneticist. Currently she serves as a member of the SSSA medical advisory board. She has a specific interest in and knowledge of the speech, language, and communication characteristics of individuals with Sotos, and a love for working with Sotos individuals and their families. She will be talking about speak and language and Sotos Syndrome. 

People will be able to dial into the conference or attend in person. There will be a registration fee, to help cover our costs, but it won’t exceed $40/person.

We also plan on launching our mentoring program, which will be very exciting!

If you are interested in registering your interest, please do so here. 

We look forward to meeting with you!