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Miss G and Me
We are so excited to announce that we have partnered up with Miss G and Me. They will donate $5 to our association from every sale of the new Grace T-Shirt. This tee is such a fabulous addition to their Read more…
SchooI advice
Q and A with Nanette – Nanna, and Shantel – Mum of Zac, who is 15 and has a Sotos-like Syndrome
When you have a child diagnosed with Sotos Syndrome it can be hard to know what is right for them school wise. There may be several options to choose from and they will range in terms of academic and emotional Read more…
SchooI advice
Q and A with Debbie, Mum of Kirsty, 33, with Sotos Syndrome
When you have a child diagnosed with Sotos Syndrome it can be hard to know what is right for them school wise. There may be several options to choose from and they will range in terms of academic and emotional Read more…
SchooI advice
Q and A with Nyssa, Mum of Hudson, 8, with Sotos Syndrome
When you have a child diagnosed with Sotos Syndrome it can be hard to know what is right for them school wise. There may be several options to choose from and they will range in terms of academic and emotional Read more…
Personal stories
Q and A with Kirsten, Mum of Angus with Sotos Syndrome
When you have a child diagnosed with Sotos Syndrome it’s hard to know what to expect, there is a list of things to watch for and each child will be affected differently. Some start life with a lot of medical Read more…
Personal stories
Q and A with Grace, a Sibling of someone with Sotos Syndrome
When you have a unique child with extra needs, be this medical or developmental support, it can effect the whole family. This includes siblings of whose perspective we don’t often hear about. Today we ‘Google Met’ with Grace Beswick, who Read more…
Personal stories
Q and A with Rebecca, Mum of Jayden with Sotos Syndrome
When you have a child diagnosed with Sotos Syndrome it’s hard to know what to expect, there is a list of things to watch for and each child will be affected differently. Some start life with a lot of medical Read more…
Personal stories
Q and A with Debbie, Mum of Rebecca with Sotos Syndrome
When you have a child diagnosed with Sotos Syndrome it’s hard to know what to expect, there is a list of things to watch for and each child will be affected differently. Some start life with a lot of medical Read more…
Personal stories
Q and A with Priyanka, Mum of Ayush with Sotos Syndrome
When you have a child diagnosed with Sotos Syndrome it’s hard to know what to expect, there is a list of things to watch for and each child will be affected differently. Some start life with a lot of medical Read more…
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Sotos Syndrome Awareness Day 6th September – what it means to have a child with Sotos syndrome
September 6th is Sotos Syndrome Awareness day, so for this I thought I would share what it is to have a child with Sotos Syndrome. What it means for us and other parents with Sotos children. This is our experience Read more…