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Personal stories

Q and A with Kirsten, Mum of Angus with Sotos Syndrome

When you have a child diagnosed with Sotos Syndrome it’s hard to know what to expect, there is a list of things to watch for and each child will be affected differently. Some start life with a lot of medical Read more…

By wadmin, 1 day1 day ago
Personal stories

Q and A with Grace, a Sibling of someone with Sotos Syndrome

When you have a unique child with extra needs, be this medical or developmental support, it can effect the whole family. This includes siblings of whose perspective we don’t often hear about. Today we ‘Google Met’ with Grace Beswick, who Read more…

By wadmin, 1 week1 week ago
Personal stories

Q and A with Rebecca, Mum of Jayden with Sotos Syndrome

When you have a child diagnosed with Sotos Syndrome it’s hard to know what to expect, there is a list of things to watch for and each child will be affected differently. Some start life with a lot of medical Read more…

By wadmin, 3 weeks ago
Personal stories

Q and A with Debbie, Mum of Rebecca with Sotos Syndrome

When you have a child diagnosed with Sotos Syndrome it’s hard to know what to expect, there is a list of things to watch for and each child will be affected differently. Some start life with a lot of medical Read more…

By wadmin, 3 weeks ago
Personal stories

Q and A with Priyanka, Mum of Ayush with Sotos Syndrome

When you have a child diagnosed with Sotos Syndrome it’s hard to know what to expect, there is a list of things to watch for and each child will be affected differently. Some start life with a lot of medical Read more…

By wadmin, 3 weeks3 weeks ago
Uncategorised

Sotos Syndrome Awareness Day 6th September – what it means to have a child with Sotos syndrome

September 6th is Sotos Syndrome Awareness day, so for this I thought I would share what it is to have a child with Sotos Syndrome. What it means for us and other parents with Sotos children. This is our experience Read more…

By wadmin, 2 months ago
Uncategorised

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By wadmin, 3 years ago
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